Money paperwork
Care funding, benefits and money
Understand whether Adult Social Care, the NHS ICB or both may fund P's care, prepare for a CHC review, and build P's money picture. Everything you enter stays in this browser.
Care can be funded by the council's Adult Social Care service, by the NHS Integrated Care Board (ICB), or by both organisations together. The right route depends on P's assessed needs, not simply their diagnosis, where they live or who currently pays. ICBs and the CHC process described below apply in England; arrangements and names differ in Wales, Scotland, Northern Ireland and the Republic of Ireland.
Adult Social Care
Ask the council for a Care Act needs assessment. If P has eligible care and support needs, the council must prepare a care and support plan. The council will usually complete a financial assessment, so P may have to contribute towards the cost.
ICB and NHS Continuing Healthcare (CHC)
CHC is arranged and funded by the NHS for an adult whose main need is a health need. Eligibility is based on the nature, intensity, complexity and unpredictability of all their needs. CHC is not means-tested. A joint package may be appropriate when responsibility is shared between the ICB and the council.
The usual CHC assessment route
- Ask a health or social care professional for a CHC Checklist. A positive Checklist normally leads to a full assessment; it does not itself decide eligibility.
- A multidisciplinary team should assess P and complete a Decision Support Tool using evidence across all relevant areas of need.
- The team makes a recommendation and the ICB makes the eligibility decision. Ask for the completed documents, recommendation, written decision and reasons.
- If eligible, the ICB agrees a care plan and package that meets P's assessed needs. Funding responsibility should not delay urgent or necessary care.
Prepare for a CHC review
CHC is normally reviewed within three months of eligibility and at least yearly after that. A review should focus on whether P's needs have changed and whether the care package still meets them. It should not begin with an assumption that eligibility or support will be reduced.
- Ask for the review date, attendees and papers in enough time to prepare.
- Gather current care plans, daily records, incident logs, risk assessments, clinical letters and evidence of what happens when support is missing.
- Describe P's actual needs, including needs controlled by medication, skilled care or a well-managed routine. A need does not disappear because good support manages it.
- Attend with a family member, advocate or adviser. Correct inaccurate records and ask for disagreements to be recorded.
- Ask for the completed review document, any new assessment and the written reasons before accepting a reduction or change.
If you disagree or the package is unsafe
Ask the ICB for its local review or appeal process and the deadline. Set out which facts, evidence or Decision Support Tool scores are wrong. If care may be reduced, ask in writing how P will remain safe while the disagreement is considered. You can also ask an independent advocate or a community care solicitor for help. Do not stop essential care without a safe replacement plan.
Keep copies of every assessment, decision and care plan. Use the contacts page to find your council and ICB, or prepare the same information for providers with the care and housing referral form. This is general information, not legal advice.
Check help with fees first — it is free
Before borrowing anything, check whether the fee can be reduced to nothing. Apply for Help with Fees (form EX160) based on income and savings, and ask the Court of Protection about a fee exemption or remission for P using form COP44A. Some applications, such as a s.21A challenge to a DoLS authorisation, also come with non-means-tested legal aid. Borrowing money you did not need to borrow is the most common avoidable cost families tell us about.
Can the money come from P's own funds?
If the application is for P's benefit, the fee can often be paid from P's own money or later reimbursed from P's estate once a deputy is appointed. Keep every receipt. A deputy must only spend P's money in P's best interests and must be able to account for it to the Office of the Public Guardian.
Where families borrow when they must
No UK bank sells a product called a "court fee loan". In practice families use ordinary credit, so compare the total cost and the term, not the monthly payment:
- High-street personal loans — Barclays, Lloyds, Halifax, Bank of Scotland, HSBC, First Direct, NatWest, RBS, Santander, Nationwide, TSB, Co-operative Bank and Metro Bank all offer unsecured personal loans, usually from around £1,000 upwards.
- Digital banks and lenders — Monzo, Starling, Zopa, Novuna, Tesco Bank and Sainsbury's Bank lend smaller amounts, often with a quick decision.
- Credit unions — usually the cheapest option for small sums. Interest on a credit union loan is capped by law, and many lend a few hundred pounds where a bank will not. Find one through Find Your Credit Union or the Association of British Credit Unions.
- An arranged overdraft or a 0% purchase credit card — sometimes cheaper than a loan for a one-off fee, if it is cleared before the offer period ends.
- Specialist estate and inheritance lenders — firms such as Tower Street Finance lend against an estate or an expected inheritance, repaid when the estate pays out. These are far more expensive than a bank loan and are only worth considering when nothing else is available.
- Your solicitor — some firms will pay the court fee as a disbursement and add it to your bill, or agree a payment plan. Always ask; it costs nothing to ask.
Before you sign anything
- Check the lender is authorised on the Financial Conduct Authority register.
- Ask for the total amount repayable and the APR in writing, not just the monthly figure.
- Never borrow in P's name or use P's cards or accounts without legal authority to do so.
- Avoid doorstep lending, and never use an unauthorised lender. Report loan sharks to the England Illegal Money Lending Team.
- Free, independent debt advice is available from Citizens Advice, StepChange, National Debtline and MoneyHelper.
Autizma is not a lender or a broker, receives nothing from any lender named here, and the names above are examples of the kinds of lender families use rather than recommendations. This is general information, not financial or legal advice. If you need advice about borrowing, speak to a free debt adviser or an adviser regulated by the Financial Conduct Authority — you can also find advisers in our directory.
Use initials only, never P's full name or account numbers.
Income and benefits
£0.00
Outgoings
£0.00
Left each month
£0.00
Nothing added yet. Start with the benefits P receives, then the bills that come out.
- Personal Independence Payment (PIP) — daily living and mobility
- Disability Living Allowance (DLA) for under-16s
- Attendance Allowance
- Universal Credit, including the limited capability for work element
- Employment and Support Allowance (ESA)
- Carer's Allowance and Carer Element
- Housing Benefit or the housing element of Universal Credit
- Council Tax Support or a disability band reduction
- Pension Credit and State Pension
- Motability, Blue Badge, free prescriptions and travel passes
- Rent, service charge or mortgage
- Care fees, top-up fees and any client contribution
- Council tax, gas, electricity, water, broadband and phone
- Food, clothing, toiletries and continence products
- Transport, taxis and Motability payments
- Activities, respite, day services and college costs
- Insurance, TV licence and subscriptions
- Debts, arrears and repayment plans
- Benefit award or decision letters (last 12 months)
- Bank statements for the last 3 months for every account
- Payslips or pension statements
- Care invoices and the local authority financial assessment
- Rent statement or mortgage statement
- Council tax bill and utility bills
- Any appointeeship letter from the DWP
- Letters about arrears, debt or enforcement
List each document on your evidence timeline, and copy the totals above into the money boxes on your COP forms.
This is general information from families who have been through the process, not legal or financial advice.